WHAT YOU NEED TO KNOW ABOUT CF
According to the Cystic Fibrosis Foundation, research conducted each day brings scientists closer to a cure. In 1966, the median age of survival for a person with CF was just over seven years. Because of improvements in medical technology and the individual management of patients, that age has climbed to 31. Yet CF continue to affect about 30,000 children and young adults in the United States - approximately one out of every 3,300 newborns are affected by the fatal disease.
According to friends, Billy described his disease as trying to breath with a bandanna stuffed down in his lungs with hands covering his mouth.
LINK TO OTHER RELATED SITES TO LEARN MORE ABOUT CF:
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. The Cystic Fibrosis Foundation is proud to be a resource of information about cystic fibrosis.
The CYSTIC-L Cystic Fibrosis Discussion/Support Group is an unmoderated mailing list of people impacted by Cystic Fibrosis -- people with CF, parents, friends, doctors, lovers, and relatives. Since the mailing list started in June of 1994, Cystic-L has become a small virtual community, where people ask for advice, pass along their knowledge and understanding of CF, share their sorrows and their joys.
3. Cystic Fibrosis : Cystic Fibrosis Information
"Hi! I made this page because I have CF, and I would like to educate and inform as many people as I can about it. ....."
A very in-depth site with topics such as Symptoms of CF, History of CF, Statistics, Common Misconceptions, Lung Infections, Medications, Medical Equipment, Tests, Secondary effects, Transplants, General Information, Support, & Children issues and New Treatments. As of Jan.17, 1999, there are 641 CF links accessible from this site.
4. Click here: The Cystic Fibrosis Web Ring
The Cystic Fibrosis Ring started in August of 1997, and was developed to link Cystic Fibrosis sites. Once these sites are all linked together they will form a ring of information, encouragement and insight. Our goal is to provide a place where readers can easily find whatever information they seek because it is our belief that KNOWLEDGE IS POWER.
5. Cystic Fibrosis Resource Center at HealingWell.com - Your Guide to Cystic Fibrosis
Cystic Fibrosis Resource Center with great search engine, Message Boards, On-Line Information and numerouse links to other CF sites and Medical sites.
The most links ever - some very technical and research based, some basic sites, meta-links, Companies doing CF-relevant research, CF Centers & Programs, General Research Tools & Resources & more.
7. The Ortho-McNeil CF Care Website: Home Page
The CF Care website provides people with cystic fibrosis, family members, and the CF community with quick and easy access to education, information, and breaking stories on the latest treatments and issues related to cystic fibrosis. This site is intended for U.S. audiences only. Ortho-McNeil Pharmaceutical has always been a leader in demonstrating an impressive commitment to people living with cystic fibrosis, their families, and caregivers.
This Scandipharm site offers support forums, as well as CF links, Web resources, books, legal and pharmacy information and a directory of state Cystic Fibrosis Associations. Please browse through our site to see how this site can help make the lives of cystic fibrosis patients and their families easier. P> FORUMS: Select the forum that suits your needs and talk with other people who have similar needs, hopes and frustrations. Our forums are unique because they are geared toward the particular needs of different groups affected by CF. Each group can talk about how this disease is touching them at this time in their lives. How does CF affect school, dating, work or parenting? Talk to those going through exactly what you are going through without having to censor your feelings. Share your battles and your triumphs! FORUMS: Young People, Teenagers, Adults, & Families
9. Second Wind Lung Transplant Association, Inc.
To improve the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, by providing support, love, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years.
10. drkoop.com: Personal Drugstore
Great site and search engine for general medical questions and Health news, including: Drug Checker - Find all the information you wanted to know about the drugs you are taking. Are you taking more than one medication? Find out if they interact dangerously.